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Showing posts from April, 2012
Please consider donating toward a cure! http://www.active.com/donate/phfmi
http://www.facebook.com/pages/Michigan-Pediatric-Hydrocephalus-Foundation-Inc/248490548503254

Check out this Slideshare presentation

http://slideshare.net/SMS_2015/hydrocephalus-by-drarshad Respectfully, Jason Adams
http://www.thisisbristol.co.uk/Surgeon-admits-errors-girl-s-treatment/story-15837558-detail/story.html "Neurosurgeon Mike Carter admitted mistakes were made in the treatment of student Diana Moore, who died at the hospital in April 2006 from water on the brain (hydrocephalus).". Awful. Some lessons learned?
May 2008 - Carmen asks if she can breastfeed Hawke in NICU and dr says "if he can eat. He may not even be able to swallow" based on his birth this probably was an appropriate response. Thank you Lord for doing the miraculous! ! Thanks for hope in a hopeless world
Great story http://www.observer-reporter.com/th/story11/04-12-2012-Hydrocephalus
Consider praying for my friend Ashley and her family as her son is fighting hard with hydrocephalus. "I am so scared for my son, I hope everything gets better soon" -Ashley Mantheiy. There are valleys while fighting hydrocephalus that seem bottomless; we have hope n Jesus. Pray they will have wisdom as well.
5 months ago the physiatrist (Dr in charge of Hawke's therapy) said Hawke would need Botox. We thought they might inject it today. Praise God his muscle tone has improved and he does not require Botox! Thanks for prayers. And praise God for progress!!!!
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YDROCEPHALUS  is a disorder with ventriculomegaly caused by impairment of CSF circulation. Cerebrospinal fluid shunting is the most common treatment for hydrocephalus, and the VP shunt is the most common type of shunt configuration. Shunting CSF leads to improvement in patients with NPH; however, clinical improvement due to shunting has been varied.1,3,4,13,14 Failure to improve after CSF shunting has been attributed to complications such as obstruction, infection, and shunt malfunction.15 Another potential reason for failure to improve after shunting is a mismatch between the function of the shunt system and the patient's needs. Implantation of an unsuitable shunt can lead to overdrainage, underdrainage, or variable drainage of the CSF. http://thejns.org/doi/pdf/10.3171/foc.2007.22.4.12

Look close, pupils unequally dilated

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Ugh, hate hydrocephalus!!!!!
http://nhfonline.org/MoreHydrocephalusFacts.pdf