An internationally recognized day to increase awareness of people with different abilities and decrease the rejection and misconception of people with different challenges. #DayOfAcceptance 1/20/16
Posts
TOP 5 "Bridging the Gap" Apps of 2015 according to "Parenting special needs"
BridgingApps took a look back at some of its most popular app reviews from 2015. They select Apps to target and improve individual skill development to help children and adults with disabilities reach their highest levels of physical and cognitive development. Read their most accessed app reviews from 2015.
SEE IT NOW: https://parentingspecialneeds.org/article/top-5-apps-of-2015/
2016 Campaigns
The year 2016 is a pretty important election year, and with that being said, the PHF is introducing 2 "election themed" campaigns to raise awareness, advocate & support the passing of HR 2313; Advancing Research for Hydrocephalus Act.
Plenty more details to follow on these 2 campaigns, including the introduction of the following election style campaign buttons.
These campaign buttons will be worn by PHF'ers and given out to elected officials & staffers to help promote & advocate for HR 2313 at all our visits to Capitol Hill to build up support for passage of this critical legislation for the Hydrocephalus Community; the creation of a National Registry for Hydrocephalus for use by the CDC, FDA, NIH & HHS
Welcome to 2016!!
The PHF started 7 years ago this month with 4 families from New Jersey. All having a child with Hydrocephalus, we recognized the need for a Pediatric focused advocacy & support organization, which did not exist, and Hydrocephalus Research Funding, which was not being done at that time.
Our slogan, tagline & mission statement were all the same:
"Funding a Cure for Hydrocephalus"
Seven years later, we now have over 50 Volunteers from over 30 States in the US joining with us, sharing & believing in our Mission Statement!
Over the years, we have donated OVER $150,000 to medical institutions, children's hospitals, other Hydrocephalus advocacy organizations & various neurosurgery departments to be used for the care and betterment of those with Hydrocephalus.
In addition, we are honored to have been able to provide OVER $200,000 in Hydrocephalus Research Funding:
$115,000 Boston Children's Hospital
$ 25,000 Bitol Desig