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Showing posts from February, 2016
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When your son throws up and you hope he has a fever but he doesn't. Too many symptoms point to a likely shunt failure. 12:30 on a Saturday night, that sinking feeling as my wife drives Hawke to ER In order to have multiple pictures of his head taken. The moment you think "this time" could be his next brain surgery. Praising God, no shunt malfunction but a "change" noted (follow up). Thank you Lord for so much!! #WeNeedACure #PHF #HydrocephalusSucks
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PHF UPCOMING EVENT! Friday March 25th Gametime: 7:00pm PHF Michigan Pediatric Hydrocephalus Awareness Night NBA's Detroit Pistons host the Charlotte Hornets! The Palace of Auburn Hills 6 Championship Drive Auburn Hills, MI 48326 Please join us on Friday, March 25th as the Detroit Pistons take on the Charlotte Hornets. Contact Jason Adams @ (810) 441-9170 or email jason@hydrocephaluskids.org to order tickets. $8.00 from every ticket purchased goes to support the PHF's Mission!
** HR 2313 Update ** NEW Co-Sponsor of HR 2313 It was officially announced today that Congressman Bill Pascrell (NJ), joined Congressman Leonard Lance, Congressman Andre Carson & Congressman Rodney Davis as Co-Sponsors of Congressman Chris Smith's Bill HR 2313; The Advancement of Hydrocephalus Research Act of 2015! #HR2313 #momentum