Overcoming hydrocephalus

Holding your child while they fall asleep one Hand on a bare piggy while the house is silent.  Reflecting on all of Gods Grace and Mercy shown in this life.  Puts everything in perspective.  Some intimate time with Jesus.  Thank You Adonai!

Some days Hawkes stuttering is terrible :-/ #braindamage

http://www.youtube.com/watch?v=SAt5deRyhtg&sns=em

"Watch this toddler hear clearly for first time and laugh uncontrollably" The toddler is also a hydro warrior. http://fox2now.com/2014/01/27/watch-this-toddler-hear-clearly-for-first-time-and-laugh-uncontrollably/

Before his first birthday, Owen Rush had undergone five surgeries for an incurable brain condition. http://www.goupstate.com/article/20140125/ARTICLES/140129727/1083/ARTICLES?Title=Chesnee-boy-with-brain-condition-selected-for-awareness-campaign#gsc.tab=0

Directors,                 My son Hawke has endured 10 brain surgeries and is only five years old.  He has a condition that is incurable, I have idea's on  innovating current treatment options but lack the resources .  In third world countries children are not being treated.  The existing technology has not changed in 50 years in treatment options.  I am requesting an opportunity to meet with a member of the team whom helped created the "Diabetic" contact lens.  I am a parent whom is tired of seeing these children and my own suffer from brain surgery after brain surgery (the leading cause of brain surgery for children).  Existing treatment only works half the time and fails in two years requiring an additional brain surgery.  Please consider responding – with great appreciation!   Respectfully,   A Parent fighting for a cure! Jason Adams 810-441-9170 jasongadams@ymail.com www.fightinghawke.blogspot.co

 subscribe to key words on Google alerts in order to comb information on new technologies etc that can be used to treat or cure hydrocephalus.  This article and technology is interesting. . . . maybe if I could coordinate a workshop with Google/Shunt manuf/Neurosurgeons we could improve our 50 year old treatments.  #YourNeverOutOfTheFight #KeepDreaming   http://www.foxnews.com/tech/2014/01/16/google-announces-contact-lens-glucose-monitor/?intcmp=features

Since 2010, PHF awarded $225,000 in grants and donations to Hospitals, Neuroscience Institutes and Medical Research Centers for research and education. For information, visit HydrocephalusKids.org.

Sharpening my neurosurgery and hydrocephalus knowledge.    Some great and free resources through iTunes U.

Preparing books to be donated to U of M Children's and Detroit Children's Pediatric Nuerosurgery Department :-) 

Had to administer acetaminophen this morning to get through the weather change.  I hate you hydrocephalus. Sent from my iPhone

Forgetting how wise and inquisitive Hawke has become we made the mistake of talking about an upcoming Nuerosurgery check up.... He won't quit asking questions.  Next time traveling to opposite room to discuss ;-)

Pediatric Hydrocephalus Foundation, Inc. ** Congressional Email ** The email has been sent to OVER 300 email addresses in both the House & Senate, consisting of Chief of Staff, Legislative Directors, Legislative Aides/Assistant, Schedulers, etc., and there will be another wave of emails on Monday and then followup calls where needed. Even though many people are still out of the office, we have heard back from some and have meetings already set up for our visit on January 22nd when Cole, Kim & I are in DC!! https://m.facebook.com/story.php?story_fbid=694377743926415&id=176479809049547&ref=m_notif&notif_t=notify_me&actorid=176479809049547&__user=106800436

Please click the link and fill in your name, email and state to add your name to a letter addressing congress. On December 30th, a 6-year-old boy from Wisconsin & on January 1st, a 16 DAY old baby girl from Indiana, both lost their battle with Hydrocephalus and passed away.  https://www.facebook.com/permalink.php?story_fbid=693420940688762&id=176479809049547

This year we have already lost two children to hydrocephalus... Please keep these families in prayer. This condition is a time bomb..... All can be great and suddenly take a turn for the worse 💔 Copy to one announcement below :-/ https://www.facebook.com/permalink.php?story_fbid=693293990701457&id=176479809049547