Overcoming hydrocephalus

Sometimes in Hawke's victories we are reminded of Jaxon (Hawkes identical twin - deceased). You look at Hawke and catch yourself daydreaming of what could of been. Another boy just like Hawke, what a joy it would of been to experience being his father and mother raising both of them. Identical, would of been so cool! I don't post much about Jaxon. A few months ago Hawke and I were in a department store and he was looking in the mirror happy as could be smiling at himself. It hit me like a bag of bricks, what it would be like to have his brother Jaxon growing up together. There is a peace to know he is with The Lord and has no worries, yet in a healthy and balanced way reflecting on what life would be like with him is somewhat therapeutic. Lets not forget the family picture our sweet girls draw include Jaxon in many of them, they were so young. Life is such a gift. Thank you for your promises Lord! Respectfully, Jason Adams

Sometimes in Hawke's victories we are reminded of Jaxon (Hawkes identical twin - deceased). You look at Hawke and catch yourself daydreaming of what could of been. Another boy just like Hawke, what a joy it would of been to experience being his father and mother raising both of them. Identical, would of been so cool! I don't post much about Jaxon. A few months ago Hawke and I were in a department store and he was looking in the mirror happy as could be smiling at himself. It hit me like a bag of bricks, what it would be like to have his brother Jaxon growing up together. There is a peace to know he is with The Lord and has no worries, yet in a healthy and balanced way reflecting on what life would be like with him is somewhat therapeutic. Lets not forget the family picture our sweet girls draw include Jaxon in many of them, they were so young. Life is such a gift. Thank you for your promises Lord!

Hawke has had weight issues (lack of appetite, eating). We wondered if he may have to receive a feeding tube it was getting so bad. I'm very excited and grateful post this update below, thanking The Lord! Thank you for your prayers.

Praise God or Hawke's best eye appointment to date!  He still has eye conditions I have to google and pray on: Esotropia, Exotropia, & Hypertropia

Optomologist appointment for Hawke today, praying for NO surprises (had two eye surgeries this year). His eyes appear to be dong well (no more strabismus). Praying for accuracy.

A story about neglect and hydrocephalus is tragic. Reading a story like this is a smack of reality. Treatment needs to make tremendous progress and will require tremendous advocacy, R&D, prayer and investment! http://m.thejakartapost.com/news/2013/06/05/parents-child-with-hydrocephalus-squeal-ombudsman-being-neglected-hospital.html