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Showing posts from July, 2016
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My wife talking to Hawke (8 Years old 10 Brain surgeries) "Hey poo-bear, it's raining, did you know that was coming"? Hawke replied "Uh yeah, my head said it was going to rain when I woke up". #WeNeedACure #Hydrocephalus #PHF
Top Five Facts: • Hydrocephalus is a lifelong condition, affecting over one million Americans from newborn to seniors • An average of 40,000 shunt operations are performed each year in this country • Americans spend in excess of $1 BILLION to treat this condition • Hydrocephalus is believed to occur in about 1 per 500 births • Lack of advancements in treatment have left many people with hydrocephalus unable to lead full and productive lives http://www.hydrocephaluskids.org/wordpress/?page_id=8
The PHF #shunthappens T-Shirt Fundraiser!! $20 for the latest merchandise offering for the PHF Universe; Gildan Brand Cotton Tee from S-XL (2XL-4XL also available) https://www.booster.com/california-pediatric-hydrocephalus-foundation-fundraiser
"It was revealed the cause of death was hydrocephalus – water on the brain – which led to his collapse and eventual death" This parent lost a child unnecessarily, heartbreaking. Increasing awareness and advocacy is critical for our children. Neglect weather intentional or incidental is possible and therefore requires tenacity by the parent or patient. We need a cure desperately. Our children, our community. #PHF #Hydrocephalus. https://www.aop.org.uk/ot/professional-support/clinical-and-regulatory/criminal-trial-of-optometrist-begins
"The teenager lives with hydrocephalus, an incurable brain disease. She has survived 23 brain surgeries" http://www.stargazette.com/story/news/local/2016/06/30/horseheads-furniture-store-teams-up-bellas-journey/86557882/