Overcoming hydrocephalus

I was blessed to meet with the Regional Manager and Legislative counsel of Senator Stabenow's office. I also met with Senator Peters Constituent Director. Our meetings went very well while an honest interest in our concerns was present. I spoke about Hawke, the hydrocephalus community and Rare Disease legislation H.R. 1421 (that will be beneficial to both communities if approved). I also challenged both Senators to support and champion an H.R. 2313 companion bill in the Senate. We need the "Advancing research for hydrocephalus Act of 2015" to pass the house first. Please contact your congress and request them to support approving H.R.2313. THANK YOU FOR ALL OF YOUR CONTINUED SUPPORT! #PHF

Tomorrow, I am meeting with Senator Stabenow and Senator Peters to advocate for hydrocephalus. Specifically requesting that the two join the hydrocephalus congressional caucus and to champion a companion bill H.R. 2313 Advancing Research for Hydrocephalus Act of 2015. https://www.govtrack.us/congress/bills/114/hr2313

Next Saturday! Getting excited ! It's not too late to join us. Did you know 20-30,000 Veterans have or will develop hydrocephalus (DOD Report 2012)? Grants we fund go toward research that can help the entire hydrocephalus community.