Overcoming hydrocephalus

Beautiful U Salon volunteered and helped coordinate our fundraiser in July, like them please and check out the PHF album from the event! https://m.facebook.com/?refsrc=http%3A%2F%2Fwww.facebook.com%2F&_rdr#!/BeautifulUSalonSpa?v=photos&cps&album=a.353961861353967.83657.350767598340060&%24MURI__user=0

http://www.hydrocephaluskids.org/wordpress/

The moment your hydrocephalus child falls on his head and says it hurts where his shunt is. Holding your breath overnight praying for no symptoms and your child wakes normally w/no symptoms.  The moment he acts normal and great priceless, praise God!  In a moments notice life can change. #LiveLikeYourDying

PHF is donating children's books to Mott Children's Hospital Nuerosurgery department! Received them from the PHF president today :-)

Give a gift that makes a differance this year! Donate to PHF any dollar amount in a loved ones name or just to make a differance. Please consider, without donations we cant support research or advocacey. www.active.com/donate/phfmi

Meeting with great friends and remembering what we have overcome. These two are some fighters!

Don't know if its symptomatic of brain damage? Bad hydrocephalus day or what! Sometimes it dissipates and turns into a great Hawke day.....

http://www.sciencedaily.com/releases/2012/12/121211101826.htm

Today we turn in the heart monitor that Hawke wore for 24 hours. A few months ago Hawke had an abnormal EEG but nothing urgent in the abnormality.  Friday the cardiologist heard a pause in his heart rate and that's why he wore the monitor.  Hawkes been acting great, Praise God. Expecting and praying for good feedback.

Although the link talks a lot about adults, it's pretty educational. http://www.ccjm.org/content/74/Suppl_1/S128.full.pdf

Did you know PHF consists of all volunteers!? No-one receives a salary! We have no building to lease ALL donations go toward the cause! Grants for research, raising awareness and more! Feel free to drop a question anytime! http://www.active.com/donate/phfmi

Thanks everyone! Eye appointment went well, NO MORE eye surgeries! We couldn't stomach one more of those. Praise God!

Hawke has an appointment with a cardiologist today and the opthamologist tomorrow.  Praying and expecting accurate and good feedback in Jesus name.  No surprises. 

Thank you to all whom have donated!  PHF Michigan ($500.00), PHF Hawaii and all of you just donated toward funding the University of Illinois @ Chicago "An obstruction sensor w/non surgical clearance system" -Hydrocephalus research project http://www.active.com/donate/phfmi