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Showing posts from September, 2014

Hawke

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This is our son Hawke Adams! He is 6 years old. He has three awesome siblings, a great smile, and a fighting spirit. He has had 10 shunt surgeries, 8 within a four month period. Hawke was born dead along with his identical twin, Jaxon, who passed. After 13 minutes, God blessed Hawke with breath! Hawke suffered an intraventricular hemorrhage from his birth and was diagnosed with hydrocephalus at two days old. Eight months later, Hawke receive his first shunt. His family loves this cute fighter!
With National Hydrocephalus Awareness month end closing in, please consider making any donation to the PHF. Without donations we can't provide grants for research. Remember, no one collects a salary at PHF and we are a 501(c)3. http://www.active.com/donate/phfmi
Day 26 of National Hydrocephalus Awareness Month. Did you know the Dandy-Walker malformation accounts for two to 10 percent of children with hydrocephalus? It is defined by hypoplasia of the cerebellar vermis, cystic dilatation of fourth ventricle and hydrocephalus. Now you know! Tell someone and spread the awareness.   ‪#‎ phf‬ ‪#‎ hydroawareness‬   ‪#‎ realactionrealchange‬
Another PHF State Director making a difference! http://www.wpsdlocal6.com/story/26576545/a-local-mom-is-raising-awareness-about-hydrocephalus
Day 19 of National Hydrocephalus Awareness Month. Did you know the first ever Pediatric & Adult Hydrocephalus Congressional Caucus was founded by Congressman Leonard Lance, (NJ) and Congressman Tim Walz, (MN) by request of the Pediatric Hydrocephalus Foundation? Prior to 2011, there was NO such group in Congress. Now you know! Tell someone and spread the awareness.   ‪#‎ phf‬ ‪#‎ hydroawareness‬   ‪#‎ phfhydroblue‬
Day 8 of National Hydrocephalus Awareness Month. Did you know Hydrocephalus may be acquired? Acquired hydrocephalus develops at the time of birth or at some point afterward. This type of hydrocephalus can affect individuals of all ages and may be caused by injury or disease. Now you know! Tell someone and raise awareness!  ‪#‎ phf‬ ‪#‎ hydrowareness‬   ‪#‎ phfhydroblue‬