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Day 19 of National Hydrocephalus Awareness Month. Did you know the first ever Pediatric & Adult Hydrocephalus Congressional Caucus was founded by Congressman Leonard Lance, (NJ) and Congressman Tim Walz, (MN) by request of the Pediatric Hydrocephalus Foundation? Prior to 2011, there was NO such group in Congress. Now you know! Tell someone and spread the awareness.  ‪#‎phf‬‪#‎hydroawareness‬ ‪#‎phfhydroblue‬

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We would like to thank Alicia Cloutier of RE/MAX Encore for sponsoring a hole in our upcoming golf tournament to raise money for a cure!  Alicia has been an advocate for hydrocephalus research and a personal friend for many years.  Please consider her as an agent if you are entering the real estate market. Alicia Cloutier / Realtor RE/MAX  436 S. Broadway St., Suite E Lake Orion, MI 48362.  Direct (248) 891-2087 http://www.aliciacloutier.com/home.asp
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Hydrocephalus kills. Please read and pray. This family lives on west side of state: "This is the hardest decision we have ever had to make. The test came back not good. He basically has no brain function at all. We have made the decision to take him off the vent. It wouldn't be fair to him if we kept him like this. No parent should have to go through this. I just pray for Gods strength as we take this step. There are lots of people waiting for Colton with open arms. Including his brother or sister, grandpa, uncles, cousin, and many more....Thank you all for all the prayers. I wish I could meet everyone in person but since that is not possible. Could you take a minute to copy and repost this so everyone will know how grateful we are for you thoughts and prayers." Here is the bkgrnd info from my PHF counterpart: He is a year old, born with hydro and 2 holes in his heart. He had open heart surgery last year at U of M and his heart has been getting stronger with every day....
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