Your not alone / What it's like
I am posting a text conversation that my wife and I exchanged last week between one another (with her permission and some edits). ITs an example of what it can be like having a child with a condition where advances (significant) are lacking and desperatelly needed. The text may also let other hydrocephlaus parent know they aren't alone. The scenario is this: Im at work and Hawke has been having good days, doing well: Carm: Hawke slept Carm: an hour & a half & got up for a lil while but is layin & cuddlin w me like he's goin back to sleep! Carm: He has a headache :( Jason: He said his head hurt? Jason: Dnt like that Jason: Concerns me a little Carm: No. Keeps closin or covering eyes & covered his ears when loud noise. Layed himself down flat & yawning Jason: Ok, tnks Carm: What should I do? Carm: He's just layin on me quiet & motionless Jason: Should u do? Jason: Monitor? Jason: Is he sleeping? Carm: Eyes open but arm acrss ...