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Showing posts from June, 2014
Dreaming of a future with better treatment, preferably a cure "10 days after she had her ninth surgery to alleviate her hydrocephalus" http://www.chattanoogan.com/2014/6/26/279235/Ema-McLaughen-5-Attends-Miss.aspx
A real Dad raising the bar for his little girl!   http://www.foxnews.com/health/2014/06/23/video-dad-dancing-with-special-needs-daughter-goes-viral/?intcmp=obnetwork

Vent

Really hate the affects of immobility physically and mentally on my child.
Help raise funds to fight hydrocephalus when you amazon (costs you nothing) Amazon donates 0.5% of the price of your eligible purchases to the charitable organization of your choice when you shop at smile.amazon.com
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Father's Day weekend
Good read, reminder! "Here's what solid, scientific research tells us about the profound impact fathers have on their children's emotional, physical, mental and intellectual growth:" http://www.daveramsey.com/blog/meg-meeker-real-dads-vs-dumb-dads
These are the 50 top-ranked centers for children with serious neurological problems. Survival following complex surgery, surgical complications and infection prevention were among the kinds of data, collected from a detailed U.S. News survey of children's hospitals, that produced 83.3 percent of each hospital's score. The other 16.7 percent reflects how many of 450 pediatric neurologists and neurosurgeons responding to surveys in 2012, 2013 and 2014 recommended the hospital for serious cases. http://health.usnews.com/best-hospitals/pediatric-rankings/neurology-and-neurosurgery
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Always be thoughtful of new toys when your child has a programmable shunt.  After a short review we realized this spidey toy had a pretty strong magnet.  Successfully removed w/o breaking the toy :-)
I consider this a parent  must-read 1: Warn your Girl Child Never to sit on anyone's laps no matter the situation including uncles. 2: Avoid Getting Dressed in front of your child once he/she is 2 years old. Learn to excuse them or yourself. 3. Never allow any adult refer to your child as 'my wife' or 'my husband' 4. Whenever your child goes out to play with friends make sure you look for a way to find out what kind of play they do, because young people now sexually abuse themselves. 5. Never force your child to visit any adult he or she is not comfortable with and also be observant if your child becomes too fond of a particular adult. 6. Once a very lively child suddenly becomes withdrawn you may need to patiently ask lots of questions from your child. 7. Carefully educate your grown ups about the right values of sex . If you don't, the society will teach them the wrong values. 8: It is always advisable you go through any new Material like cartoons you just bou