Overcoming hydrocephalus

PHF Photo on the Logo Campaign  Hydrocephalus Awareness Month Now - End of September WHO WANTS ONE??? Send an email to mike@hydrocephaluskids.org w/ picture of Hydro Hero  What is it? What does RESEARCH mean to YOU? Welcome to the 1st Annual Hydrocephalus Awareness Month 'Photo on the Logo' Fundraising & Awareness Campaign, starring your Hydro Hero! ***** The Ask: We ask that you load your 'Photo on the Logo' on your Facebook page at least 4 times until the end of September; sharing your story and having your family & friends support our mission of "Funding a Cure for Hydrocephalus" and adding this line to your Facebook post:  September is Hydrocephalus Awareness Month #phfham2016. Please join me in funding research for #Hydrocephalus by donating here: http://www.active.com/donate/phfham2016 All donations are tax-deductible.  How simple is that??? Now, who wants one again?? Sent from my iPhone

We would like to thank Alicia Cloutier of RE/MAX Encore for sponsoring a hole in our upcoming golf tournament to raise money for a cure!  Alicia has been an advocate for hydrocephalus research and a personal friend for many years.  Please consider her as an agent if you are entering the real estate market. Alicia Cloutier / Realtor RE/MAX  436 S. Broadway St., Suite E Lake Orion, MI 48362.  Direct (248) 891-2087 http://www.aliciacloutier.com/home.asp

We are strong!!! #PHFDC2016 #CureHydrocephalus

New flyer for our golf outing on 9/25. We still have open spots for teams, individuals and hole sponsorship! Sent from my iPhone

We still have available holes to sponsor at our upcoming Golf outing on 9/25.  We also have team and individual registration openings available.  Please contact me if interested! 810-441-9170, jason@hydrocephaluskids.org .  Registration is $90.  Included is the following: 18 Holes of golf, Door prizes, Snack at the turn, Range balls, One drink ticket and dinner at the end! https://www.facebook.com/events/1666842176971940/?ti=icl

Sharing our friends post and beautiful hydrocephalus fighters photo:  "Friends, can I ask that you help us reach $3000 before Saturday? If 26 of my friends donated $1.00 we would make it!  Our goal this year is to completely surpass last years raised amount of $5000 and it takes a large community to help with that. Even if you are not joining us for the walk, you can make a donation at the link below :) At 5 years of age, Willow has endured 14 brain surgeries. Her shunt can fail at any time and that requires new surgeries. There are research projects out there that need to be funded to support a treatment and future CURE so she does not need surgeries any longer.  http://active.com/donate/phfwalkmi2016 Sent from my iPhone

** YOUR DONATION DOLLARS AT WORK ** RESEARCH MATTERS!! It's a great accomplishment to be sure as the PHF has funded HUNDREDS of THOUSANDS of dollars in research projects since our inception in 2009. One of our top recipients is Boston Children's Hospital with the team of Dr. Warf, Dr. Madsen & Dr. Lehtinen. One specific Research Project has seen tremendous success and now hits the street for clinical trials!!! Seeing this project go from a sketch drawing three years ago, to a presentation slide two years ago, and just this past April, holding the prototype in my hand, to it now being in the clinical phase brings joy to my heart and tears in my eye!! It's what we said we would do from DAY ONE and we're doing it! Here is a picture with Dr. Madsen from our visit with him this past April with PHF Board of Directors and our Massachusetts State Chapter Director with her Hydro Hero daughter. http://www.prnewswire.com/news-releases/alcyone-lifescienc

Interesting development / concept: "This is a simple and intuitive idea, and I am very hopeful that it will benefit many children by reducing shunt problems." -Benjamin Warf, Principal Investigator of the clinical study at BCH http://www.prnewswire.com/news-releases/alcyone-lifesciences-announces-clinical-use-of-the-reflow-system-for-the-treatment-of-hydrocephalus-300307433.html