Overcoming hydrocephalus

Your LAST DAY to give a tax-deductible gift to the PHF, Inc. in 2013. MI PHF Friends,     As 2013 comes to an end, this is also your LAST DAY to give a tax-deductible gift in 2013 to the Pediatric Hydrocephalus Foundation.  Help US make a difference as we "Fund a Cure for Hydrocephalus"  Any amount WILL really make a difference. http://www.active.com/donate/phfmi From all of us at the PHF, Thank You, and we wish you and your loved ones a happy and healthy New Year!

The sad truth is many babies are abandoned in many countries due to hydrocephalus.   Many can't afford to save their baby from hydrocephalus.  Every life is precious, we need a breakthrough. "Despite the stigma associated with caring for such babies and the high treatment cost, the parents are keen on keeping her, but are struggling to mobilize 2,000 Ghana cedis for surgery." http://www.ghanaweb.com/GhanaHomePage/NewsArchive/artikel.php?ID=296437

Merry Christmas & happy holidays!   You can still make a last minute donation on behalf of a loved one :-) http://www.active.com/donate/phfmi

Magnet heads up!   Hawke's CHRISTmas gift is being returned,has magnets.  Heads up programmable shunt parents and friends!

A lot of detail still need to be worked out. They have been going down there for 17 years. They won't even know how many people are needed or going until later next year. Will have better idea this summer if it's going to happen or not. Listening to the neurosurgeon administrator talk about it; breaks my heart knowing after one week all have the drs leave and come back. Imagine the dr that performed a life saving surgery on your child is gone for a year :-/. Hydrocephalus apparently occurs at a high rage down there..... Prayers for cure needed!!

What started out as a conversation about donating books to U of M Children's from PHF turned into a conversation about going on a Guatemalan trip to help children with hydrocephalus next year.  More to come! Hmmmm

"National Faces of Hydrocephalus Awareness" Campaign 2014: ** CONTEST ENDS 2 WEEKS FROM TODAY !! ** 106 Entries have been received! EMAIL your entries to mike@hydrocephaluskids.org (Entries made via Facebook will NOT be accepted.) Open to anyone with Hydrocephalus 19yrs & Under. We are looking for one male and one female 'Face of Hydrocephalus' to serve as our National Spokesperson for our 2014 National Hydrocephalus Awareness Campaign, with marketing and promotional materials all through the year ending September 2014 with National Hydrocephalus Awareness Month. We will randomly select ONE male and ONE female from all entries received. 1) YOU must LIKE this page 2) Just submit one picture of your nominee, between the ages of newborn to 19 years old, with their name, D.O.B., and location. 3) Please include in your email your permission that the PHF is authorized to use the picture for promotional purposes 4) Failure to comply with Rules #1

Hawke has tubes and a prefers toon in one lobe which occurred during the tube surgery. Regularly scheduled appointment.

Great night!  Raised over $400.00 for research and awareness.  With no salaries to pay every dime goes toward the cause #PHF#Pistons

We raised $400.00 all for a cure! Loved meeting everyone. You all made this successful :-)

http://www.active.com/donate/phfmi

Wish I could join the protest, i'll pray for the protesters and a right of a parent and safety of the child http://politicker.com/2013/12/protest-planned-against-last-minute-bloomberg-push-for-mandatory-flu-vaccines/

Many great free books in PDF format to download.  Here is one I am going to browse and may spike your interest: http://www.nap.edu/openbook.php?record_id=18400

In the warming cabin while picking a Christmas tree

I'm not sure why this has come up, but I have been reflecting on what a blessing Canyon has been to all of us. Just as every child we have been given is a blessing; Canyon has uplifted Hawke in ways that I never fathomed. If your familiar with Hawke's story in short you know Hawke's and his brother were both diagnosed with TTTS while in the womb. They overcame much to say the least and both were born dead unecisarilly. Losing Jaxon we mourn but embrace our surviving son Hawke. 3 months in NICU to make a long story short. To have more children was no option in my mind. I closed myself off to the notion. Than I took it to prayer and The Lord changed my heart and mind. We were blessed with Canyon! He is such an bolt of lightning and cuddler. What Hawke has learned from Canyon and the companionship he enjoys with his brother is irreplaceable and has helped Hawke grow mentally and emotionally. We can't predict the future but we can seek God and make logica

Weather changes like this really impact hydrocephalus fighters and my Facebook newsfeed reflects that.  Please keep them in prayer and pray for a cure! 

Hawke's at "work" (Physical Therapy) captivating the staff once again :-)  Thank you lord for his sweet spirit, for Your Holy Spirit.

Today is CYBER MONDAY! While you are doing your on-line Christmas shopping today make some purchases at Amazon! They will donate a portion of each sale to the PHF! Just click the link! Thank you! https://smile.amazon.com/ch/26-4582806   If you are shopping for gifts consider purchasing a lower level Piston's ticket including a free throw shot on the court after the game for $30.00  on December 15th !  Message us or contact Jason @ 810-441-9170 https://www.facebook.com/events/600750203306496/

"I love your kisses Daddy" - Hawke