Overcoming hydrocephalus

Hawke had a great thanksgiving! If your new to this blog he was given hardly any expectations. He was born dead and was given breath from God after being passed for at least 13 minutes at birth. We all had a great thanksgiving praise God!

I subscribe to FDA device approval list.  Interesting development for people with seizures. "What is it?  The RNS System helps reduce the frequency of seizures in epilepsy patients who have frequent, disabling, partial-onset seizures and have not responded well to medications.  It consists of a stimulator implanted in the skull under the scalp and leads implanted in the brain." http://www.fda.gov/MedicalDevices/ProductsandMedicalProcedures/DeviceApprovalsandClearances/Recently-ApprovedDevices/ucm376685.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery

Informative article http://www.themobilityresource.com/dos-and-donts-when-witnessing-a-disabled-child-having-a-meltdown/

Many of you DO see what we see! "I wish you could see the beauty, to look beyond a disability to see the person, just the person. The beauty not only from the outside, but the incredible beauty that's found in the heart." http://specialneedsparenting.net/wish-you-could-see-what-i-see/

Big sister at PT as Hawke works on his bridges :-)

Please consider voting Hawke's Physical Therapist as on rod the best! She is exceptional and her staff is exceptional as well going above and beyond! http://bit.ly/1hUtLO2

Organized a fundraiser for Hawke's incurable condition hydrocephalus.  Join us for a good time December 15th at the Palace!     $10.00 per ticket ($30.00) will be donated toward the all volunteer 501C non-profit!  Plus buy a ticket from me and you get to take a freethrow on the court!

Join us December 15th to watch the Detroit Pistons play The Portland Trailblazers!  Call me (810-441-9170) or message us if you are interested in joining us.  Exclusive through PHF we will also get to shoot on the court after the game! 30$ a ticket, 10$ Per ticket will be donated to PHF! More to come :-)

An optometrist appointment today for Hawkman. Eyes dilated and a thorough exam. Praying for no surprises and accurate results! If there was increased intracranial pressure it would be found while looking at the optic nerves.

http://www.hydrocephaluskids.org/files/hawke.html   This story was written by Hawke's 13 year old cousin Hanna. Hanna wrote this story for a State-wide school essay contest called My Michigan Personal Hero   When you hear the word hero, I bet you think of a guy with a cape on in a comic book or on TV? I did until my little cousin Hawke was born on May 14th, 2008. Hawke and his twin brother Jaxon were first pronounced dead at birth. Doctors had to make many resuscitation attempts to revive both boys. Finally after twelve long minutes, Hawke took his first breath! Sadly Jaxon did not survive. During the resuscitation attempts, a hemorrhage formed in Hawke's brain causing Hydrocephalus. Hydrocephalus is a rare condition where there is an excessive amount of fluid that builds up in the brain. Doctors, then figured out they had needed to place a shunt in his head, to help drain the excess fluid that builds up in his brain. Unfortunately for Hawke, this would not be th...