Overcoming hydrocephalus

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** BREAKING NEWS ** US HOUSE OF REPRESENTATIVES PASSES 21st CENTURY CURES ACT 344 - 77!! We thank Chairman Upton & Representative DeGette for their BIPARTISAN leadership in this effort.  And a PHF thank you to our own Board of Director Jennifer Westdyke & PHF PA State Chapter Director Jenna Sciulli who participated in Round-table Discussions on 2 occasions in Pennsylvania as this legislation was crafted & created.  What this means to the Hydrocephalus Community? * Increased funding to the NIH over the next 5 years to total just under $9 BILLION DOLLARS * Faster & more efficient FDA approval process (think SHUNT improvements / new technologies reaching the market quicker) What's next? The Bill heads to the Senate to start the same process ending with a vote, and then if passed, to the President's desk for a signature.

"Bullied most of her life. She shared through her personal experience that the most important thing in ending the bullying of a child with  special needs  is" http://www.abilitypath.org/areas-of-development/learning--schools/bullying/articles/bullying-special-needs-overview.html Respectfully, Jason Adams

Very successful PHF Hydrocephalus Charity luncheon today! Over forty people, who had never heard of hydrocephalus, are now well aware of the condition. We also raised some funds, thanks to the generosity and support of so many!

Tomorrow I'm presenting to some influential people at the Detroit Renaissance Center in order to raise awareness for hydrocephalus & highlight The Pediatric Hydrocephalus Foundation. The Hawke story, straight up (over 1 million affected in the U.S.). Forever greatful David Darovitz #Determined #PHF #NeedACure #NeedInnovation

Hawke our hydrocephalus fighter turned seven today!! So grateful, praising God and our amazing support network!!