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Possibly the most inspiring video I have ever listened to. A lot to take away from this!

http://www.youtube.com/watch?v=QzPbY9ufnQY&sns=em

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Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html
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*** Breaking News *** The PHF and its Founder's Michael & Kimberly Illions, have been nominated and selected as one of the Finalists to receive a RareVoice Award in the Patient  Advocate category at this year's RareVoice Awards Gala, being held on Thursday, October 10th at the Arena Stage in Washington DC.  "This is a great honor and the timing couldn't be better as National Hydrocephalus Awareness Month begins on September 1st, and we just came back from our Hydrocephalus Awareness Day on Capitol Hill with over 125 people from 20 States", stated Michael Illions, the Vice President & Director of Advocacy for the PHF. Everyone at the PHF congratulates the other nominees from the National MPS Society, Parent Project Muscular Dystrophy, Acid Maltase Deficiency Association, Jett Foundation, University of North Carolina Chapel Hill & Jonah's Just Begun. The Second Annual Rare Voice Awards Gala is a celebration to honor advocates who gave rare disease pa
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Learning more about the shunt & hydrocephalus

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HAVE YOU EVER WANTED TO MEET A SHUNT “COMPANY” REPRESETNATIVE/SPECIALIST? HERE ARE SOME HIGHLIGHTS FROM OUR MEETING: The meeting yesterday with the shunt/medical device representative could not have gone better.   The representative or “Nuero specialist” provided me with some great insight.   Additionally he offered to help in any reasonable way possible.   Some key points from the meeting included:   What we call shunt failures are typically the proximal catheter (Catheter from the shunt to the ventricle) acquiring a buildup of protein and blocking CSF (Spinal fluid) flow from the ventricle to the shunt.   This particular representative expressed how from his perspective it’s viewed as a condition or by-product of hydrocephalus, not necessarily a “failure of the product”.   But stated that we need to have innovation that would prevent the buildup   and stop the blockage.   This representative named Frank showed serious passion for innovation and the patient (It was nice t
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