Overcoming hydrocephalus

#AIFM1 #Genetics Variant c.1424C>T #Morocco Looking for a family in Morocco with a member who has the same condition. Sent from my iPhone

My inspiration for this run is Hawke. Hawke is our son and is thirteen. Hydrocephalus is one of many challenges he faces which are incurable. We consider hydrocephalus the most dangerous condition he has. Hawke is one of a million living in the U.S. with hydrocephalus and he has endured ten brain surgeries as a result. No cure exists for hydrocephalus. Thank you for your support through this event 😁. REGISTRATION CLOSES SUNDAY NIGHT 9/12. All money raised benefits the non profit MI PHF.#hawkesummerrun #hydrocephalus https://runsignup.com/Race/MI/Metamora/HawkeSummerRun

Consider registering for our 5K 10K Run, walk roll to help us raise funds for a cure! All proceeds benefit the MI PHF which is a registered 501(c)3 :-) Link and details below: #hawkerun https://runsignup.com/Race/MI/Metamora/HawkeSummerRun 5K or 10K Run, walk or roll, anywhere you choose with our virtual event. Registration is open, you can choose when to run between August 1st and September 18th. Register here and post your completed photo to our Facebook page, or anywhere on social media with the hashtag #Hawkerun. We are trying to discover a cure or breakthrough in how hydrocephalus is treated, half of all shunts fail within two years. All the money raised through registration is directly deposited to the Pediatric Hydrocephalus Foundation a registered 501(c)3 TIN  26-4582806 .  Learn more about hydrocephalus @ www.hydrokids.org.  To learn more about the event, hydrocephalus or the Pediatric Hydrocephalus Foundation please contact me, Jason Adams the Co-Director for the State of Mic

Hawke has been doing well, hope you and yours are doing well all things considered. You can follow up with our Foundation Michigan Pediatric Hydrocephalus Foundation  @ www.facebook.com/MIPHF or via Facebook on my personal page  https://www.facebook.com/jason.seven.33 Sent from my iPhone

Checking to see if posting from my email still functions :-)

Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html