My inspiration for this run is Hawke. Hawke is our son and is thirteen. Hydrocephalus is one of many challenges he faces which are incurable. We consider hydrocephalus the most dangerous condition he has. Hawke is one of a million living in the U.S. with hydrocephalus and he has endured ten brain surgeries as a result. No cure exists for hydrocephalus. Thank you for your support through this event 😁. REGISTRATION CLOSES SUNDAY NIGHT 9/12. All money raised benefits the non profit MI PHF.#hawkesummerrun #hydrocephalus https://runsignup.com/Race/MI/Metamora/HawkeSummerRun
*** Breaking News *** The PHF and its Founder's Michael & Kimberly Illions, have been nominated and selected as one of the Finalists to receive a RareVoice Award in the Patient Advocate category at this year's RareVoice Awards Gala, being held on Thursday, October 10th at the Arena Stage in Washington DC. "This is a great honor and the timing couldn't be better as National Hydrocephalus Awareness Month begins on September 1st, and we just came back from our Hydrocephalus Awareness Day on Capitol Hill with over 125 people from 20 States", stated Michael Illions, the Vice President & Director of Advocacy for the PHF. Everyone at the PHF congratulates the other nominees from the National MPS Society, Parent Project Muscular Dystrophy, Acid Maltase Deficiency Association, Jett Foundation, University of North Carolina Chapel Hill & Jonah's Just Begun. The Second Annual Rare Voice Awards Gala is a celebration to honor advocates who gave rare disease pa
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