Overcoming hydrocephalus

Its been a hard year. . . In the last few days Hawke hasn't improved and a surgery or adjustment seem near imminent. We keep praying and hoping in Jesus as anything is possible in Christ! Here is a text from my wife that brings joy ;-). "The boyz were super cute tonight!!! Hawke got into the smaller suitcase & Canyon was shutting the lid on him & Hawke was laughing. It was so nice to hear him laugh!!!" Sent on the Sprint® Now Network from my BlackBerry®

He is doing well enough to stay out of the hospital. Trust me, I pray I can answer your question better as in he is doing great but its not the case. Cleveland is the clinic we are committed to despite the hardship it may create. . . What's more important than the quality of his care. Tommorrow picking up CT scans from july and august for the Cleveland clinic, going to give it to them whenever our next trip is required. So we are walking by faith and observing and seeking Wisdom from God. Thanks Donna! Sent on the Sprint® Now Network from my BlackBerry®

http://www.hydrocephaluskids.org/wordpress/?p=718 Sent on the Sprint® Now Network from my BlackBerry®

Sent on the Sprint® Now Network from my BlackBerry®

So we leave DC early due to Hawke not feeling well and yesterday he acts as though he feels great! So far today looks promising regarding his behavior as well. This is a roller coaster from one extreme to the other. Praising God for how Hawke seems to be feeling and ill praise him when Hawke feels bad too. . A lot easier when things are going well to Praise our Creator. Have a great day everyone and thanks for all your support this past Friday! Sent on the Sprint® Now Network from my BlackBerry®

Hydrocephalus Awareness Day on Capitol Hill was a huge success. Thanks to all those who came from across the Country to speak and to the Members of Congress and Congressional Staffers who came to listen and learn! The PHF was proud to have organized this historic day for the Hydrocephalus Community! Sent on the Sprint® Now Network from my BlackBerry®

We are just 48 hours away from what will be an historic day for the Hydrocephalus Community. I am so looking forward to our Hydrocephalus Awareness Day on Capitol Hill, and to meeting many of you for the first time.   Congressman Lance is confirmed to join us and meet all of you, as well as say a few words, (time is yet to be determined based on the House's voting schedule on Friday). Other Member's of Congress will also be dropping by. The majority of our attendees will be staffers from the Legislative departments who are responsible for Health related issues for their Congressional office.   C-SPAN: Congressman Lance's office did another follow-up with them yesterday. While it is on their schedule as a 10am-1pm event, they just will not give a confirmation.   While I am writing this, I just confirmed that we will have the ability to stream the live video feed over the internet on our UStream-TV channel. This will allow anyone with the internet to ...