A location I will share hydrocephalus relevant information that include technological advances and other resources. A blog to share my experiences, patient advocacy information and Hawke updates (my son with hydrocephalus). @fighthydro
I'll be heading to DC in August!
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Good Luck to PHF VP/Director of Advocacy Mike Illions as he heads to Capitol Hill in Washington, DC today. REAL ACTION & REAL CHANGE. We don't just talk about it at the PHF, WE DO IT!
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Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html
Washington is over 3 months away! Right around the corner to advocate for hydrocephalus Advocacy.......to help Hawke and all the people fighting this condition. Advancement is sparse, no cure and current treatment options are less than promising. Keep this trip and cause in prayer! In the meantime children and people will suffer when the weather changes due to Hydrocephalus, endure many brain surgeries sometimes one after another, suffer brain damage, terrible quality-of-life for many just to name a few.
www.hydrocephaluskids.org
Jason@hydrocephaluskids.org
My inspiration for this run is Hawke. Hawke is our son and is thirteen. Hydrocephalus is one of many challenges he faces which are incurable. We consider hydrocephalus the most dangerous condition he has. Hawke is one of a million living in the U.S. with hydrocephalus and he has endured ten brain surgeries as a result. No cure exists for hydrocephalus. Thank you for your support through this event 😁. REGISTRATION CLOSES SUNDAY NIGHT 9/12. All money raised benefits the non profit MI PHF.#hawkesummerrun #hydrocephalus https://runsignup.com/Race/MI/Metamora/HawkeSummerRun
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