September is National Hydrocephalus Awareness Month! You know how we know? Because the PHF is the organization that went to Congress in 2009 to have a Resolution declared and passed! Prior to July 2009, there was NO Awareness Month! Stay tuned for an EXCITING AND GROUNDBREAKING MONTH :-)
*** Breaking News *** The PHF and its Founder's Michael & Kimberly Illions, have been nominated and selected as one of the Finalists to receive a RareVoice Award in the Patient Advocate category at this year's RareVoice Awards Gala, being held on Thursday, October 10th at the Arena Stage in Washington DC. "This is a great honor and the timing couldn't be better as National Hydrocephalus Awareness Month begins on September 1st, and we just came back from our Hydrocephalus Awareness Day on Capitol Hill with over 125 people from 20 States", stated Michael Illions, the Vice President & Director of Advocacy for the PHF. Everyone at the PHF congratulates the other nominees from the National MPS Society, Parent Project Muscular Dystrophy, Acid Maltase Deficiency Association, Jett Foundation, University of North Carolina Chapel Hill & Jonah's Just Begun. The Second Annual Rare Voice Awards Gala is a celebration to honor advocates who gave rare disease pa
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