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@fighthydro


In a little over 30 days we are meeting on Capitol Hill to advocate for hydrocephalus! @congressblog #hydrocephalus #needacure

Carmen Adams Diana Crane

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Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html
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*** Breaking News *** The PHF and its Founder's Michael & Kimberly Illions, have been nominated and selected as one of the Finalists to receive a RareVoice Award in the Patient  Advocate category at this year's RareVoice Awards Gala, being held on Thursday, October 10th at the Arena Stage in Washington DC.  "This is a great honor and the timing couldn't be better as National Hydrocephalus Awareness Month begins on September 1st, and we just came back from our Hydrocephalus Awareness Day on Capitol Hill with over 125 people from 20 States", stated Michael Illions, the Vice President & Director of Advocacy for the PHF. Everyone at the PHF congratulates the other nominees from the National MPS Society, Parent Project Muscular Dystrophy, Acid Maltase Deficiency Association, Jett Foundation, University of North Carolina Chapel Hill & Jonah's Just Begun. The Second Annual Rare Voice Awards Gala is a celebration to honor advocates who gave rare disease pa
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Shunts

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http://pediatricdevicesatlanta.org/self-monitoring-shunt-hydrocephalus This shunt sounds exciting (with caution).  Here is a problem........ It makes me mad.... The last new shunt by codman was released to The American market in late 2012. It took Codman 8 years to receive FDA approval. 8 years!!!  Meanwhile it was being used in Europe.  The 510 K process is what the FDA calls the new small medical device approval process
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