-

Just confirmed my appointment with Senator Levin to advocate for the hydrocephalus community!  Coordinating a meeting with Representative Miller next.   #PHF 



Comments

Post a Comment

Popular posts from this blog

-
We would like to thank Alicia Cloutier of RE/MAX Encore for sponsoring a hole in our upcoming golf tournament to raise money for a cure!  Alicia has been an advocate for hydrocephalus research and a personal friend for many years.  Please consider her as an agent if you are entering the real estate market. Alicia Cloutier / Realtor RE/MAX  436 S. Broadway St., Suite E Lake Orion, MI 48362.  Direct (248) 891-2087 http://www.aliciacloutier.com/home.asp
Read more
-
Image
PHF Photo on the Logo Campaign  Hydrocephalus Awareness Month Now - End of September WHO WANTS ONE??? Send an email to mike@hydrocephaluskids.org w/ picture of Hydro Hero  What is it? What does RESEARCH mean to YOU? Welcome to the 1st Annual Hydrocephalus Awareness Month 'Photo on the Logo' Fundraising & Awareness Campaign, starring your Hydro Hero! ***** The Ask: We ask that you load your 'Photo on the Logo' on your Facebook page at least 4 times until the end of September; sharing your story and having your family & friends support our mission of "Funding a Cure for Hydrocephalus" and adding this line to your Facebook post:  September is Hydrocephalus Awareness Month #phfham2016. Please join me in funding research for #Hydrocephalus by donating here: http://www.active.com/donate/phfham2016 All donations are tax-deductible.  How simple is that??? Now, who wants one again?? Sent from my iPhone
Read more

Hydrocephalus kills

-
Hydrocephalus kills. Please read and pray. This family lives on west side of state: "This is the hardest decision we have ever had to make. The test came back not good. He basically has no brain function at all. We have made the decision to take him off the vent. It wouldn't be fair to him if we kept him like this. No parent should have to go through this. I just pray for Gods strength as we take this step. There are lots of people waiting for Colton with open arms. Including his brother or sister, grandpa, uncles, cousin, and many more....Thank you all for all the prayers. I wish I could meet everyone in person but since that is not possible. Could you take a minute to copy and repost this so everyone will know how grateful we are for you thoughts and prayers." Here is the bkgrnd info from my PHF counterpart: He is a year old, born with hydro and 2 holes in his heart. He had open heart surgery last year at U of M and his heart has been getting stronger with every day....
Read more