A location I will share hydrocephalus relevant information that include technological advances and other resources. A blog to share my experiences, patient advocacy information and Hawke updates (my son with hydrocephalus). @fighthydro
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Do you I your child have a mettle valve shunt? There's an app for it. Hawke had the valve for a short period this summer.
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Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html
Washington is over 3 months away! Right around the corner to advocate for hydrocephalus Advocacy.......to help Hawke and all the people fighting this condition. Advancement is sparse, no cure and current treatment options are less than promising. Keep this trip and cause in prayer! In the meantime children and people will suffer when the weather changes due to Hydrocephalus, endure many brain surgeries sometimes one after another, suffer brain damage, terrible quality-of-life for many just to name a few.
www.hydrocephaluskids.org
Jason@hydrocephaluskids.org
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