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Meeting with advocates from Michigan, they are representing rare diseases as I represent a neglected condition and PHF (hydrocephalus)


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Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html
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PHF Photo on the Logo Campaign  Hydrocephalus Awareness Month Now - End of September WHO WANTS ONE??? Send an email to mike@hydrocephaluskids.org w/ picture of Hydro Hero  What is it? What does RESEARCH mean to YOU? Welcome to the 1st Annual Hydrocephalus Awareness Month 'Photo on the Logo' Fundraising & Awareness Campaign, starring your Hydro Hero! ***** The Ask: We ask that you load your 'Photo on the Logo' on your Facebook page at least 4 times until the end of September; sharing your story and having your family & friends support our mission of "Funding a Cure for Hydrocephalus" and adding this line to your Facebook post:  September is Hydrocephalus Awareness Month #phfham2016. Please join me in funding research for #Hydrocephalus by donating here: http://www.active.com/donate/phfham2016 All donations are tax-deductible.  How simple is that??? Now, who wants one again?? Sent from my iPhone
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Shunts

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http://pediatricdevicesatlanta.org/self-monitoring-shunt-hydrocephalus This shunt sounds exciting (with caution).  Here is a problem........ It makes me mad.... The last new shunt by codman was released to The American market in late 2012. It took Codman 8 years to receive FDA approval. 8 years!!!  Meanwhile it was being used in Europe.  The 510 K process is what the FDA calls the new small medical device approval process
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