Hart Senate Building

-
Have you ever sat down with parents and people with Rare/Neglected, conditions/diseases?  One woman here created a foundation called "Syndromes without a name".  Learning so much from one another! 


Comments

Post a Comment

Popular posts from this blog

-
Interesting publication: Smartphone-assisted minimally invasive neurosurgery. "neurosurgical procedures with the aid of smartphone-endoscope integration: intraventricular procedures, such as treatment for hydrocephalus" https://medicalxpress.com/news/2018-03-smartphone-assisted-neuroendoscopy.html
Read more
-
Image
My inspiration for this run is Hawke. Hawke is our son and is thirteen. Hydrocephalus is one of many challenges he faces which are incurable. We consider hydrocephalus the most dangerous condition he has. Hawke is one of a million living in the U.S. with hydrocephalus and he has endured ten brain surgeries as a result. No cure exists for hydrocephalus. Thank you for your support through this event 😁. REGISTRATION CLOSES SUNDAY NIGHT 9/12. All money raised benefits the non profit MI PHF.#hawkesummerrun #hydrocephalus https://runsignup.com/Race/MI/Metamora/HawkeSummerRun
Read more